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Risk Thresholds and Risk Classifications Pose Problems for Person-Centred Care
Mette Kjer Kaltoft1, Jesper Bo Nielsen2, Jack Dowie3
1Odense University Hospital Svendborg, Denmark.
Insights
Classifying individuals into risk levels is common but ethically problematic. Preference-sensitive, multi-criteria decision tools offer a better approach for informed consent, moving beyond single-criterion risk labels.
Area of Science:
- Medical Decision Making
- Bioethics
- Health Informatics
Background:
- Continuous risk scores are frequently categorized into discrete risk levels (e.g., high, moderate, low).
- This mono-criterial classification raises ethical concerns regarding informed consent and individual preferences.
- Current risk stratification may not adequately capture the multifaceted considerations important to patients.
Purpose of the Study:
- To propose and conceptually demonstrate preference-sensitive, multi-criteria decision support tools.
- To address the ethical and legal challenges posed by single-criterion risk labeling.
- To illustrate an alternative approach to risk communication that avoids arbitrary risk categories.
Main Methods:
- Conceptual development of decision support tools based on multi-criteria analysis.
- Demonstration of a proof-of-method for preference-sensitive decision support.
- Illustrative use of the statin decision as a case study (without empirical data).
Main Results:
- A conceptual framework for multi-criteria decision support was developed.
- The proposed method bypasses the need for discrete risk-level classifications.
- The statin decision example illustrates the potential of this approach.
Conclusions:
- Preference-sensitive, multi-criteria decision support tools can overcome limitations of traditional risk stratification.
- This approach enhances the quality of informed consent by incorporating individual values.
- Future development should focus on implementing such tools to improve patient-centered care.
Abstract:
Classification of a continuous risk score into risk levels is common. However, while the absolute risk score is essential, it is arguably unethical to label anyone at 'high, moderate or low risk' of a serious event, simply because management based on a single criterion (e.g. avoiding the target condition) has been determined to be effective or cost-effective at a population level. Legally, mono-criterial risk labeling can inhibit the obtaining of a fully-informed, preference-based consent, since multiple considerations (various benefits and harms) matter to most individuals, not only the single criterion that is the basis of the provided risk category. These ethical and legal challenges can be met by preference-sensitive multi-criteria decision support tools. In this future vision paper, we demonstrate, at a conceptual proof-of-method level, how such decision support can and should be developed without reference to risk-level classifications. The statin decision is used as illustration, without any empirical claims.
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