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Published on: October 19, 2014
[Paediatric Palliative Care: What is different in children compared to adults?]
Insights
Paediatric palliative care (PPC) is crucial for children with life-limiting conditions, a growing population often overlooked in Switzerland. PPC differs significantly from adult care due to the diverse age range, conditions, and family-centered needs of pediatric patients.
Area of Science:
- Pediatrics
- Palliative Care
- Public Health
Background:
- The number of children and adolescents requiring paediatric palliative care (PPC) is increasing globally.
- Switzerland shows a lag in awareness and services for PPC compared to other developed nations.
- An estimated 5,000 Swiss children live with life-limiting conditions needing PPC.
Purpose of the Study:
- To highlight the unique aspects of paediatric palliative care compared to adult palliative care.
- To underscore the growing need for PPC services in Switzerland.
- To inform about the prevalence and causes of childhood mortality relevant to PPC.
Main Methods:
- Review of existing data on the prevalence of life-limiting conditions in children.
- Analysis of causes of death in childhood.
- Comparison of paediatric palliative care needs with adult palliative care.
Main Results:
- Prevalence of PPC needs in children is estimated at 32 per 10,000 population (UK data applied to Switzerland).
- Common causes of death include perinatal conditions, accidents, and complex chronic diseases.
- Paediatric palliative care is characterized by a wide age spectrum, diverse diseases, and comprehensive family needs.
Conclusions:
- Paediatric palliative care is a distinct field requiring specialized approaches due to patient heterogeneity.
- There is a significant unmet need for PPC in Switzerland.
- International models of hospital-based PPC programs offer a framework for addressing these needs.
Abstract:
Paediatric Palliative Care: What is different in children compared to adults? Abstract. The number of children and adolescents (0 - 18 years) with life-limiting conditions and needs for paediatric palliative care (PPC) is rising. In Switzerland, the awareness for these needs lags largely behind other developed countries. In the United Kingdom, the prevalence for children with life-limiting conditions and PPC needs was estimated at 32 children per 10'000 population (0 - 19 years). In Switzerland, this would correspond to an absolute number of 5'000 children living with a life-limiting condition and potentially in need of PPC. In contrast, the number of deaths accounts for around 500 children (0 - 18 years) every year. Most common causes of death are perinatal conditions, contributing to nearly 50 % of all deaths in childhood, followed by accidents and complex chronic conditions such as genetic / congenital disorders, neurological and cardiac conditions and cancer. Compared to adults with palliative care needs, the group of children is significantly smaller but at the same time highly heterogenic. Heterogeneity relates to: the whole age continuum from neonates, infants and children to adolescents; a broad spectrum of diseases including rare diseases; a variety of needs due to age, development and the illness, e. g. needs for specialist care or technical support; various in- and outpatient settings. Paediatric care always encompasses the whole family and their particular needs. Internationally, hospital-based programmes have been developed and implemented to meet these particular needs of children and their families.
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