Home-Based, Therapist-Assisted, Therapy for Young Children With Primary Complex Motor Stereotypies

Harvey S Singer1, Shreenath Rajendran1, H Richard Waranch1

  • 1Johns Hopkins University School of Medicine, Baltimore, Maryland.

Pediatric Neurology
|July 28, 2018
PubMed

Insights

Home-based behavioral therapy effectively reduces complex motor stereotypies (CMS) in children. Parent-led interventions, supported by therapist phone calls, significantly improved symptoms in young patients.

Area of Science:

  • Pediatric Neurology
  • Behavioral Therapy
  • Child Psychology

Background:

  • Complex motor stereotypies (CMS) are characterized by rhythmic, repetitive movements.
  • These movements typically manifest before three years of age and can be interrupted by distraction.

Purpose of the Study:

  • To evaluate the efficacy of a home-based, parent-provided therapy for children aged five to seven with primary CMS.
  • The therapy was augmented by scheduled telephone consultations with a therapist.

Main Methods:

  • Families received an instructional DVD, written materials, and scheduled therapist calls over eight weeks.
  • Outcome measures, including the Stereotypy Severity Scale (SSS) and Stereotypy Linear Analogue Scale (SLAS), were completed via telephone and REDCap.
  • Participants were categorized into intent-to-treat (ITT) and lost-to-follow-up (LTF) groups.

Main Results:

  • A significant reduction in SSS Motor and Impairment scores was observed between initial and final evaluations (P ≤ 0.001).
  • Calculated change ratios indicated notable improvements across SSS Motor, SSS Impairment, and SLAS.
  • Parent-reported improvement scales and questionnaires corroborated clinical findings.

Conclusions:

  • Home-based, parent-administered behavioral therapy, supplemented with therapist telephone contact, is effective for reducing CMS in children.
  • This approach offers a viable treatment option for managing complex motor stereotypies in pediatric populations.
Abstract

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