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Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation

Daniel J Lee1,2, Robert Cronin2,3,4, Jamie Robinson2,5

  • 1Department of Urology, Vanderbilt University Medical Center, Vanderbilt University, Nashville, Tennessee, United States.

Applied Clinical Informatics
|August 9, 2018
PubMed

Insights

Engaged parents improve child illness outcomes. An Engagement Consultation Service identified common caregiver needs, offering educational and tech solutions to support hospitalized children and their families.

Area of Science:

  • Pediatric Healthcare
  • Patient Engagement
  • Caregiver Support

Background:

  • Informed parents positively impact pediatric illness outcomes.
  • Understanding caregiver needs is crucial for enhancing patient engagement.
  • An Engagement Consultation Service (ECS) was established in 2014 to address these needs.

Purpose of the Study:

  • To identify common health-related needs of caregivers for hospitalized pediatric patients.
  • To detail recommended educational and technological interventions for these needs.

Main Methods:

  • Extracted caregiver needs from 3 years of ECS consultation notes.
  • Classified needs using a taxonomy of consumer health needs.
  • Documented typical recommendations and their administration.

Main Results:

  • Common needs include post-discharge communication, medical device use, symptom assessment, provider communication, information seeking, prognosis understanding, and emotional support.
  • Interventions included apps, websites, print materials, and online groups.

Conclusions:

  • Hospitalized pediatric patients' parents have identifiable health needs addressable by education and technology.
  • An inpatient ECS offers a scalable model for identifying needs and providing support during and after hospitalization.
Abstract

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