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Peer Support Through a Diabetes Social Media Community
Valerie Gavrila1, Ashley Garrity1,2, Emily Hirschfeld1
11 Child Health Evaluation and Research Center, University of Michigan, Ann Arbor, MI, USA.
Journal of Diabetes Science and Technology
|January 3, 2019
Summary
Online communities like CGM in the Cloud offer vital peer support for type 1 diabetes (T1D) management. Members receive and give technical, emotional, and medical help, fostering empowerment and altruism.
Area of Science:
- Health Sciences
- Social Sciences
- Computer Science
Background:
- Type 1 Diabetes (T1D) management presents unique challenges for patients and caregivers.
- Online communities, such as Facebook groups, have emerged as platforms for peer support.
Purpose of the Study:
- To assess the impact of an online community, CGM in the Cloud (associated with the Nightscout Project), on peer support for individuals with T1D.
- To explore how members of this online group experience and benefit from peer support.
Main Methods:
- Conducted semistructured qualitative interviews with caregivers and patients within the CGM in the Cloud Facebook group.
- Analyzed interview transcripts to identify themes related to peer support dynamics.
Main Results:
- Peer support was characterized by the exchange of technical, emotional, and medical assistance.
- Support extended beyond the online platform, facilitating in-person connections.
- A strong sense of "paying it forward" and community altruism was evident.
Conclusions:
- Online communities offer diverse avenues for peer support, including emotional and technical assistance.
- These communities can empower individuals and foster confidence through shared experiences and altruism.
- The collective spirit within the online group contributes to enhanced self-efficacy and mutual support.
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