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Digital Interventions to Build a Patient Registry for Rheumatology Research
William Benjamin Nowell1, David Curtis1, Michelle Thai2
1Global Healthy Living Foundation, 515 North Midland Avenue, Upper Nyack, NY 10960, USA.
Abstract:
This article aims to describe key issues, processes, and outcomes related to development of a patient registry for rheumatology research using a digital platform where patients track useful data about their condition for their own use while contributing to research. Digital interventions are effective to build a patient research registry for people with rheumatoid arthritis and other rheumatic and musculoskeletal diseases. ArthritisPower provides evidence of the value of digital interventions to build community support for research and to transform patient engagement and patient-generated data capture.
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