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Patient Perceptions of Survivorship Care Plans: A Mixed-Methods Evaluation
Erin P Antalis1, Rylee Doucette1, Gielle Kuhn1
1University of Michigan.
Oncology Nursing Forum
|June 22, 2019
Summary
Patients with cancer value survivorship care plans (SCPs) as essential health management tools to address information needs and reduce fear of recurrence. Nurses can leverage SCPs for patient education to enhance cancer survivorship care.
Area of Science:
- Oncology
- Patient Care
- Health Informatics
Background:
- Cancer survivorship presents unique challenges for patients, including ongoing health management and psychological distress.
- Survivorship Care Plans (SCPs) aim to provide a roadmap for post-treatment care, but patient perceptions of their utility are not fully understood.
Purpose of the Study:
- To explore patient perceptions of the role and purpose of Survivorship Care Plans (SCPs).
- To identify opportunities for improving SCP content and delivery based on patient feedback.
Main Methods:
- A mixed-methods study involving a high-risk sarcoma survivor population at an academic medical center.
- Data collection included electronic surveys and qualitative telephone interviews.
Main Results:
- Participants view SCPs as valuable health management tools for understanding cancer history and treatment.
- SCPs help address patient information needs and alleviate fear of recurrence.
- A minority of participants shared their SCPs with other healthcare providers.
Conclusions:
- Patients utilize SCPs for active health management and information retrieval.
- Nurses are well-positioned to utilize SCPs as a patient education tool to support cancer survivors.
- Enhancing SCP content and delivery can improve their effectiveness in cancer survivorship.
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