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Information Needs Assessment among Parents of Children with Cancer
Mohammad Esmail Motlagh1, Mehdi Mirzaei-Alavijeh2, Seyyed Nasrollah Hosseini3
1Department of Pediatrics, Faculty Medicine, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.
Insights
Parents of children with leukemia have significant information needs regarding their child's care. Higher education, better economic status, and larger family size correlate with greater information requirements for childhood cancer care.
Area of Science:
- Pediatric Oncology
- Health Information Needs
- Family Caregiver Support
Background:
- Parents of children diagnosed with leukemia require comprehensive information for effective child care.
- Understanding these information needs is crucial for developing supportive interventions.
Purpose of the Study:
- To determine the specific medical, physical, mental, and lifestyle information needs of parents caring for children with leukemia.
Main Methods:
- A cross-sectional study involving 209 parents of children with leukemia in western Iran.
- Data collected through individual interviews and analyzed using t-tests, ANOVA, and bivariate correlations.
Main Results:
- Parents reported a 55.6% score for their information needs.
- Significant positive correlations were found between information needs and higher education levels, better economic status, and larger family size.
Conclusions:
- Parents of children with leukemia express a strong need for information to manage their child's care.
- Findings can guide the development of effective programs to enhance parental information access and support for childhood cancer.
Abstract:
Background: Parents of children with leukemia should be receiving an extensive amount of information about the care of their child; the aim of this study was to determine the parents’ information needs of children with leukemia. Methods: A cross-sectional study design was used to describe medical, physical, mental and lifestyle information needs among parents of children with leukemia. 209 parents of children diagnosed with leukemia in the west of Iran, during winter 2018, voluntarily participated in individual interviews. Data were analyzed by SPSS version 16 using t-test, One-way ANOVA and bivariate correlations statistical tests at 95% significant level. Results: The mean age of participants was 39.45 years [95% CI: 38.35, 40.55], ranged from 27 to 58 years. Participants achieved 55.6% score of information needs. There was a significant relationship between higher education level (P< 0.001), better economic status (P=0.008) and more family size member (P=0.003) with information needs. Conclusion: Findings suggest that parents of children with leukemia need the information to learn how to take care of their childhood and could be useful for guiding implementers to planning and implement effective programs to promotion information of parents towards children with cancer.
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