A Paradigm Shift: Sharing Patient Reported Outcome via a National Infrastructure.

Area of Science:

• Health Informatics
• Digital Health
• Healthcare Systems Engineering

Background:

• Digital solutions are revolutionizing clinical service delivery and patient engagement in treatment decisions.
• A national initiative in Denmark aims to enhance healthcare efficiency through improved data sharing and standardized digital tools.
• Current healthcare workflows often rely on fragmented data exchange, hindering seamless collaboration.

Purpose of the Study:

• To establish a national infrastructure for secure health data sharing across diverse care sectors in Denmark.
• To develop standardized national digital cross-sector questionnaires for consistent data collection.
• To facilitate patient-reported outcomes (PRO) for proactive healthcare involvement.

Main Methods:

• Implementation of a national data-sharing infrastructure connecting hospitals, municipalities, general practitioners, and patients.
• Development and standardization of digital cross-sector questionnaires for data capture.
• Integration of a national questionnaire repository with local PRO applications.

Main Results:

• A paradigm shift in healthcare collaboration from sequential 'baton-passing' to a shared-data workflow.
• Standardized digital questionnaires are now centrally stored and utilized in local applications.
• Enabled proactive patient involvement via patient-reported outcomes (PRO) through the new infrastructure.

Conclusions:

• The national digital infrastructure and standardized questionnaires represent a significant advancement in Danish healthcare.
• This initiative promotes a more efficient, collaborative, and patient-centered healthcare system.
• The framework supports data-driven decision-making and enhances the collection and utilization of patient-reported outcomes.