Related Experiment Video
Updated: Jan 4, 2026
08:03
Multi-analyte Biochip MAB Based on All-solid-state Ion-selective Electrodes ASSISE for Physiological Research
Published on: April 18, 2013
17.8K
The Oley Foundation and Consumer Support Groups
Julie M Andolina1, Lisa Crosby Metzger1, Joan Bishop1
1The Oley Foundation, Albany Medical Center, MC 28, 99 Delaware Avenue, Delmar, NY 12054, USA.
Gastroenterology Clinics of North America
|November 1, 2019
Summary
Patients with intestinal failure (IF) needing home parenteral and/or enteral nutrition (HPEN) face complications and psychosocial challenges. Support groups like the Oley Foundation provide vital resources and community for those affected.
Area of Science:
- Clinical Nutrition
- Patient Support
- Gastroenterology
Background:
- Intestinal failure (IF) necessitates home parenteral and/or enteral nutrition (HPEN).
- IF and HPEN are linked to medical complications like infection and intolerance.
- Significant psychosocial challenges, including depression and isolation, impact patients.
Purpose of the Study:
- To highlight the multifaceted challenges faced by patients with intestinal failure on HPEN.
- To emphasize the role of support systems in managing these challenges.
- To introduce the Oley Foundation as a key resource for HPEN consumers and caregivers.
Main Methods:
- Literature review on IF and HPEN complications.
- Analysis of psychosocial impacts on patients.
- Case study/description of the Oley Foundation's programs and resources.
Main Results:
- Patients experience a range of physical and psychosocial issues.
- Traditional support groups offer peer-to-peer interaction.
- The Oley Foundation provides comprehensive support beyond traditional groups.
Conclusions:
- Addressing the complex needs of IF patients requires a holistic approach.
- Support organizations are crucial for patient well-being and management.
- The Oley Foundation serves as a model for comprehensive patient support in HPEN.