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Published on: December 9, 2022
Disseminating research findings using a massive online open course for maximising impact and developing
Nancy Preston1, Jeroen Hasselaar2, Sean Hughes3
1International Observatory on end of Life Care, Lancaster University, Lancaster, UK. n.j.preston@lancaster.ac.uk.
Expert recommendations for integrated palliative care need input from clinicians and the public, not just leading experts. Massive Open Online Courses (MOOCs) effectively gather these diverse views for better healthcare delivery.
Area of Science:
- Healthcare Delivery
- Palliative Care Research
- Public Health Policy
Background:
- Expert-driven recommendations are common in healthcare.
- The Integrated Palliative Care in cancer and chronic conditions (InSup-C) study identified best practices.
- Recommendations were initially developed via expert consultation.
Purpose of the Study:
- To further develop and validate expert recommendations with broader input.
- To engage clinicians and the public in refining healthcare guidelines.
- To assess the utility of Massive Open Online Courses (MOOCs) for recommendation validation.
Main Methods:
- Disseminated InSup-C study findings via a MOOC in 2016, 2017, and 2019.
- MOOC participants (clinicians, academics, public) ranked recommendations on a 9-point scale.
- Descriptive statistics analyzed ratings; results compared to expert consultation findings.
Main Results:
- Top MOOC-ranked recommendations included expanding palliative care to non-malignant conditions, holistic care dimensions (physical, psychological, spiritual), regular policy assessment, mandatory integration, and improved medicine availability.
- MOOC participant rankings differed from expert panel priorities, particularly regarding leadership and policymaking.
- Clinician focus appeared to be on daily care rather than the national agenda.
Conclusions:
- Healthcare recommendations should incorporate clinician and public views alongside expert opinion.
- Continuous input from clinicians, the public, and experts is vital for up-to-date recommendations.
- MOOCs provide a valuable platform for broad engagement and validation of expert recommendations.
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