Related Experiment Video

Updated: Dec 18, 2025

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Published on: August 25, 2014

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Late adolescent & young adult functioning and participation outcomes after prematurity

Mary C Sullivan1, Emma Lynch2, Michael E Msall2

  • 1University of Rhode Island College of Nursing, Providence, RI, USA; Brown University Center for Primary Care & Prevention, Pawtucket, RI, USA.

Seminars in Fetal & Neonatal Medicine
|June 13, 2020
PubMed

Insights

Optimizing outcomes for preterm infants is crucial. The International Classification of Functioning, Disability and Health Children (ICF-CY) framework helps assess adolescent and adult functioning and participation, guiding support for independence.

Area of Science:

  • Pediatrics
  • Developmental Psychology
  • Rehabilitation Medicine

Background:

  • Prematurity impacts long-term health, developmental, and behavioral outcomes.
  • The International Classification of Functioning, Disability and Health Children (ICF-CY) provides a framework for assessing these outcomes.
  • Understanding functioning and participation is key for optimizing life course trajectories.

Purpose of the Study:

  • To review the application of the ICF-CY framework for assessing outcomes in former preterm infants.
  • To highlight transitional outcomes at age 17 and emerging adult independence at age 23.
  • To examine functioning and participation domains in adolescence and adulthood.

Main Methods:

  • Review of existing literature and standardized adaptive assessments.
  • Utilizing the International Classification of Functioning, Disability and Health Children (ICF-CY) domains.
  • Inclusion of assessments like Vineland Adaptive Behavior Scales (VABS3) and Adaptive Behavior Assessment Scale (ABAS3).

Main Results:

  • The ICF-CY framework effectively measures self-care, daily living skills, applied learning, and social functioning.
  • Participation outcomes include higher education, vocational training, employment, independent living, and relationships.
  • Standardized assessments provide quantitative data on adaptive behaviors.

Conclusions:

  • The ICF-CY framework is valuable for understanding and optimizing outcomes for individuals with a history of prematurity.
  • Focusing on functioning and participation supports successful transitions into adulthood.
  • This approach aids in developing targeted interventions and social policies.

Keywords:
ActivitiesAdolescent and adult neurodevelopmental outcomesICF modelParticipationPrematurity

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