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Qualitative Study to Design an Online Community for Patients with Psoriasis
Giuliana Colussi1, Janine Sommer1, Mariana Simón1
1Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Studies in Health Technology and Informatics
|June 24, 2020
Summary
This study explored patient and dermatologist needs for psoriasis management. Findings identified key areas like social stigma and education to empower patients and inform virtual community design.
Area of Science:
- Dermatology
- Patient-centered care
- Health psychology
Background:
- Psoriasis significantly impacts patients' quality of life.
- Understanding patient and specialist perspectives is crucial for effective management strategies.
- Current support systems may not fully address the multifaceted needs of individuals with psoriasis.
Purpose of the Study:
- To investigate the unmet needs of adult patients with psoriasis.
- To identify the primary concerns of dermatologists treating psoriasis.
- To inform the development of a supportive virtual community for psoriasis patients.
Main Methods:
- Qualitative research approach utilizing semi-structured interviews.
- Interviews conducted with adult patients diagnosed with psoriasis.
- Interviews conducted with specialist dermatologists managing psoriasis patients.
Main Results:
- Four key dimensions emerged: frequently asked questions, social stigma, patient education, and patient empowerment.
- Patients expressed concerns regarding the psychosocial impact of psoriasis.
- Dermatologists highlighted challenges in patient education and engagement.
Conclusions:
- The study provides foundational insights into patient and specialist needs in psoriasis care.
- Addressing social stigma and enhancing patient education are critical areas for intervention.
- Findings support the design of a virtual community tailored to the specific needs identified.
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