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Published on: July 14, 2023
Feasibility and Acceptability of a Self-Management Program for Patients With Rheumatoid Arthritis
Jung-Hua Shao1, Kuang-Hui Yu, Su-Hui Chen
1Jung-Hua Shao, PhD, RN, Assistant Professor, School of Nursing, College of Medicine, Chang Gung University, Guishan District, Taoyuan City, Taiwan; and Assistant Research Fellow, Chang Gung Memorial Hospital, Linkou, Taiwan. Kuang-Hui Yu, PhD, Associate Professor, Chang Gung Memorial Hospital, Linkou, Taiwan. Su-Hui Chen, PhD, RN, Professor, School of Nursing, Chang Gung University of Science and Technology, Guishan District, Taoyuan City, Taiwan; and Research Fellow, Chang Gung Memorial Hospital, Linkou, Taiwan.
Background:
Joint activity and protection are key components in the management of rheumatoid arthritis (RA). Despite a shift from care in health settings to empowering patients to play an active role in the day-to-day management of their own chronic conditions, there is little evidence on RA self-management, especially for Chinese patients.
Purpose:
This pilot study sought to determine the feasibility and acceptability of a self-management program for patients with RA in Taiwan.
Methods:
Participants were recruited at a medical center in northern Taiwan. The intervention group participated in a 6-week self-management program; the control group received standard rheumatology care. Both groups underwent baseline assessments before the intervention and at 12 weeks.
Results:
A total of 32 participants were recruited: 15 in the intervention group and 17 in the control group. Patients in the intervention group found the self-management protocol beneficial to their joint protection and activity behaviors and reported higher motivation to perform RA self-management. The posttest score for joint protection and activity self-management behavior were significantly greater for the intervention group than for the control group (p = .02).
Conclusions:
Participants in the intervention group were highly satisfied with home visits (which included peer story-telling and goal setting) and telephone calls to support their daily home-based joint protection and self-management activities (which included self-monitoring and self-evaluation). To mitigate the fear of scammers, researchers should begin by building a trust relationship with participants.
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