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Multi-province epidemiological research using linked administrative data: a case study from Canada.

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Area of Science:

  • Health Services Research
  • Health Informatics
  • Public Health Surveillance

Background:

  • Canada's universal healthcare system comprises 13 provincial/territorial information systems.
  • Inconsistent data collection across these systems hinders national research and surveillance efforts.

Purpose of the Study:

  • To document the strengths and challenges of using administrative health data in a multi-jurisdictional Canadian context.
  • To propose solutions for harmonizing data for integrated research.
  • To inform the development of a national infrastructure for administrative health data.

Main Methods:

  • Case study of a Canadian research project utilizing data from five provincial healthcare systems.
  • Development and reporting of provincially comparable mental health and addiction services performance indicators.
  • Documentation of research processes, challenges encountered, and solutions implemented.

Main Results:

  • Successfully created comparable performance indicators from disparate provincial data sources.
  • Identified key challenges in data access, standardization, and comparability across jurisdictions.
  • Demonstrated the feasibility of multi-jurisdictional research with appropriate strategies.

Conclusions:

  • Canada possesses extensive administrative health data, but inter-provincial comparability remains a 20-year challenge.
  • Investment in national infrastructure can enhance data integration, reduce costs, and broaden research scope.
  • A harmonized network can support vital surveillance and policy-relevant research.