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Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children
Jessica Laird1, Melanie J Cozad2, Jessica Keim-Malpass3
1Jessica Laird is a nursing student in the College of Nursing at the University of Tennessee, Knoxville, in Knoxville, Tennessee.
Insights
Pediatric hospice care is underutilized, despite new Medicaid regulations allowing concurrent curative and hospice services for children. State implementation varies, creating both innovation and barriers for concurrent care access.
Area of Science:
- Health Services Research
- Pediatric Palliative Care
- Health Policy
Background:
- Over 55,000 children die annually in the US, with hospice care underutilized.
- A third of pediatric deaths stem from chronic conditions, with most beneficiaries enrolled in Medicaid.
- Affordable Care Act Section 2302 mandates Medicaid financing for curative and hospice services for children.
Purpose of the Study:
- To examine the state-level implementation of concurrent care for pediatric Medicaid beneficiaries.
- To identify variations and challenges in concurrent care guidelines across the United States.
Main Methods:
- Analysis of state-level implementation of concurrent care policies for Medicaid beneficiaries.
- Review of guidelines and regulations pertaining to pediatric concurrent care.
Main Results:
- Significant variability exists in state-level concurrent care guidelines for pediatric Medicaid beneficiaries.
- Concurrent care implementation has spurred innovation in pediatric end-of-life care.
- Barriers to accessing pediatric concurrent care have emerged due to implementation variations.
Conclusions:
- State-level implementation of concurrent care for pediatric Medicaid beneficiaries is inconsistent.
- Further standardization is needed to ensure equitable access to concurrent care for children facing end-of-life conditions.
Abstract:
More than 55,000 children die each year in the United States, and hospice is used for very few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of chronic, complex conditions, and the majority of these children are enrolled in Medicaid because of disability status or the severity of their disease. Changes in Medicaid/Children's Health Insurance Program regulations under Section 2302 of the Affordable Care Act require all state Medicaid plans to finance curative and hospice services for children. The section enables the option for pediatric patients to continue curative care while enrolled in hospice. We examined state-level implementation of concurrent care for Medicaid beneficiaries and found significant variability in guidelines across the US. The implementation of concurrent care has fostered innovation yet has added barriers to how pediatric concurrent care has been implemented.
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