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Advance Care Planning Shared Decision-Making Tools for Non-Cancer Chronic Serious Illness: A Mixed Method Systematic
Danetta H Sloan1, Susan M Hannum1, Lyndsay DeGroot2
1Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Shared decision-making tools can improve advance care planning for serious illnesses. These tools may enhance patient satisfaction and advance directive completion in non-cancer serious illness care.
Area of Science:
- Palliative Care
- Ambulatory Care
- Shared Decision-Making
Background:
- Shared decision-making (SDM) tools aid advance care planning (ACP) and goals of care (GOC) conversations in serious non-cancer illnesses.
- Integrating SDM tools into ambulatory care can better support clinicians and patients/caregivers.
Purpose of the Study:
- Evaluate the effectiveness and implementation of integrating palliative care SDM tools into U.S. ambulatory care.
- Focus on adults with serious, life-threatening illnesses and their caregivers.
Main Methods:
- Systematic search of PubMed, CINAHL, and Cochrane Central Register (2000-2020).
- Included quantitative controlled, qualitative, and mixed-methods studies.
- Two reviewers screened articles, abstracted data, and assessed study quality/risk of bias.
Main Results:
- Included 6 RCTs and 5 qualitative studies in primary and specialty care.
- SDM tools focused on GOC communication or ACP.
- Palliative care SDM tools may improve patient satisfaction with communication and advance directive documentation.
Conclusions:
- ACP SDM tools show potential benefits for non-cancer serious illness.
- Further trials needed to assess concordance with care received and healthcare utilization.
- Integrating palliative care SDM tools in ambulatory settings may improve patient satisfaction and ACP documentation.
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