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Definitions of Palliative Care Terms: A Consensus-Oriented Decision-Making Process.

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Inconsistent palliative care language creates barriers to accessing quality services. A new glossary, developed through expert consensus, standardizes key terms for improved communication across all care settings.

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Area of Science:

  • Palliative Care Medicine
  • Health Services Research
  • Standardization in Healthcare

Background:

  • Inconsistent terminology in palliative care hinders service design, delivery, and access.
  • A unified language is crucial for effective communication and quality improvement in palliative care.

Purpose of the Study:

  • To develop a consensus-driven, evidence-based palliative care glossary.
  • To integrate this glossary into the Health Standards Organization Palliative Care Services National Standard of Canada (CAN/HSO 13001:2020).

Main Methods:

  • Content analysis of the existing Palliative Care Services standard.
  • Environmental scan and rapid review to identify and define key concepts.
  • Modified Delphi approach with a 12-member multidisciplinary working committee, including patient/family representatives.

Main Results:

  • Key terms such as "palliative approach to care," "quality of life," "pain and symptom management," "caregivers," "palliative care," "life-limiting illness," and "serious illness" were defined.
  • A comprehensive glossary of essential palliative care terms was created.

Conclusions:

  • The developed glossary, now part of the HSO Palliative Care Services standard, promotes consistent language.
  • Standardized terminology will enhance communication and facilitate access to high-quality palliative care across diverse settings.