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Published on: December 6, 2016
[Descriptive analysis of palliative sedation in a pediatric palliative care unit]
Iñigo de Noriega1, Manuel Rigal Andrés2, Ricardo Martino Alba2
1Servicio de Pediatría. Hospital Universitario Puerta de Hierro-Majadahonda, Madrid, España.
Insights
Creating a quality standard for pediatric palliative sedation (PS) is useful. A review and retrospective analysis identified areas for improvement in PS indications, consent, and sedative dosing for children.
Area of Science:
- Pediatric Palliative Care
- Clinical Quality Improvement
- Sedation Management
Context:
- Limited data exists on palliative sedation in pediatric patients.
- Palliative care aims to improve quality of life for children with serious illnesses.
- Sedation is used to manage refractory symptoms.
Purpose:
- To assess the utility of a quality standard for pediatric palliative sedation.
- To establish a definition for pediatric palliative sedation.
- To retrospectively analyze the application of palliative sedation in a pediatric unit.
Summary:
- A non-systematic literature review identified recommendations for pediatric palliative sedation.
- A definition was created based on indication, consent, and application.
- Retrospective analysis of 17 pediatric palliative sedation cases revealed areas for improvement, particularly in documentation of consent, symptom refractoriness, and initial sedative dose titration.
Impact:
- The developed definition facilitated analysis of clinical practice.
- Identified specific areas needing improvement in pediatric palliative sedation protocols.
- Aims to enhance the quality of palliative sedation for children facing life-limiting conditions.
Introduction:
Data surrounding palliative sedation in pediatric patients is scarce. Our objective is to assess the utility of creating a quality standard for pediatric palliative sedation.
Material And Methods:
A non-systematic review of the literature was used to find recommendations for pediatric palliative sedation, after which a definition was established based on three items: (1) indication, (2) consent, and (3) application. Afterwards, a retrospective analysis of palliative sedations applied by our unit over 5 years was performed.
Results:
Out of 163 patients, palliative sedation was applied in 20, in 17 of them by our unit (14/20 males; median: 11.9 years). Twelve patients had oncological diseases, seven had neurological conditions, and one had a polymalformative syndrome. Nine patients had more than one symptom at the time of PS initiation with pain (11/17) and dyspnoea (10/17) being the most frequent. As for the definition, only three patients achieved a global completion, with the registration of the consent, specification of refractoriness and the establishment of an adequate initial sedative dose being the areas with more possible improvement.
Conclusions:
The application of the definition allowed us to analyze and find areas of improvement for our clinical practice of palliative sedation in pediatric patients.
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