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Families With Children With Neurodevelopmental Disorders During COVID-19: A Scoping Review

Shefaly Shorey1, Lydia Siew Tiang Lau1, Jia Xuan Tan2

  • 1Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore.

Journal of Pediatric Psychology
|March 24, 2021
PubMed

Insights

Caregivers of children with neurodevelopmental disorders faced challenges during the COVID-19 pandemic, including behavioral issues and disrupted routines. Telehealth services are crucial lifelines, requiring increased funding and support for families.

Area of Science:

  • Child Psychology
  • Neurodevelopmental Disorders
  • Public Health

Background:

  • Prolonged home isolation during the COVID-19 pandemic negatively impacts the psychological well-being of children and caregivers.
  • Families with children with neurodevelopmental disorders are particularly vulnerable to these adverse effects.

Purpose of the Study:

  • To identify challenges faced by caregivers of children with neurodevelopmental disorders during the COVID-19 pandemic.
  • To consolidate parenting interventions and guidelines for supporting these families.

Main Methods:

  • A systematic literature search was conducted across major databases (Embase, PsycInfo, PubMed, Scopus, LitCovid).
  • Articles published between December 2019 and November 2020 were included.
  • Thematic analysis was used to synthesize qualitative and quantitative data.

Main Results:

  • Twenty-nine articles were reviewed, revealing three key themes: behavioral issues/health concerns, disruptions to daily routines, and available support programs.
  • Caregiver strategies included online consultations, maintaining therapy, educating children on COVID-19, structured schedules, and age-appropriate activities.
  • A significant gap in research on neurodevelopmental disorders beyond autism and ADHD was identified.

Conclusions:

  • Telehealth services emerged as vital support systems for parents during the pandemic.
  • Healthcare organizations should increase funding for telehealth services to aid families with neurodevelopmental disorders.
  • Further research is needed on a wider range of neurodevelopmental disorders and evidence-based interventions.
Abstract

Keywords:
ADHDCOVID-19attentionautism spectrumhealthcare services and utilizationhyperactivityparenting

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