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Ethical Issues in Democratizing Digital Phenotypes and Machine Learning in the Next Generation of Digital Health
Maurice D Mulvenna1, Raymond Bond1, Jack Delaney2
1School of Computing, Ulster University, Shore Road, Newtownabbey, Northern Ireland UK.
Summary
Digital phenotyping captures user data from health apps. This paper explores ethical challenges in using this data for digital health interventions, focusing on data collection, storage, and machine learning applications.
Area of Science:
- Digital Health
- Health Informatics
- Computational Social Science
Background:
- Digital phenotyping leverages user interaction data from various digital wellbeing technologies, including mobile apps, chatbots, and telephony services.
- These technologies enable real-time data capture, allowing for the design of specific data recording, storage, and analysis workflows to identify usage patterns.
Discussion:
- The paper critically examines the ethical considerations surrounding the collection, storage, and utilization of digital phenotype data within digital health interventions.
- Ethical issues are explored through a case study of a digital health app, focusing on data prospecting and machine learning applications.
Key Insights:
- Ethical challenges are inherent in the entire lifecycle of digital phenotype data, from initial collection to sophisticated analysis.
- The responsible application of machine learning and artificial intelligence to digital phenotype data requires careful ethical navigation.
Outlook:
- Future research should address the democratization of machine learning and artificial intelligence for digital phenotype data to ensure equitable access and application.
- Continued ethical scrutiny is essential as digital phenotyping technologies become more integrated into healthcare and wellbeing.
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