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PedsQL™ Gastroparesis Symptoms Module Domain and Item Development: Qualitative Methods
James W Varni1, Robert J Shulman2, Mariella M Self3
1Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, TX.
Journal of Pediatric Gastroenterology and Nutrition
|April 14, 2021
Summary
Researchers developed a new Pediatric Quality of Life Inventory (PedsQL™) Gastroparesis Symptoms Module. This tool will help measure the impact of gastroparesis in children, addressing a gap in pediatric healthcare.
Area of Science:
- Pediatric Gastroenterology
- Quality of Life Measurement
- Patient-Reported Outcomes
Background:
- Gastroparesis significantly impacts children's quality of life, similar to adults.
- Currently, no validated instruments exist to assess gastroparesis symptoms in pediatric patients.
Purpose of the Study:
- To develop items and domains for the Pediatric Quality of Life Inventory (PedsQL™) Gastroparesis Symptoms Module.
- To establish content validity for a new pediatric gastroparesis symptom assessment tool.
Main Methods:
- Qualitative methods included literature review, expert panel review, and semi-structured interviews with pediatric patients and parents.
- Cognitive interviews were conducted with additional patients and parents to refine item content and domain relevance.
Main Results:
- Ten domains/scales were identified through qualitative methods, achieving item saturation with 67 items.
- The module assesses nausea, vomiting, appetite, pain, and other key gastroparesis symptoms in children.
Conclusions:
- The study supports the content validity of the new PedsQL™ Gastroparesis Symptoms Module.
- A multisite national study will be conducted for the module's field testing.
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