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Black Caregivers' Perspectives on Racism in ASD Services: Toward Culturally Responsive ABA Practice
Marija Čolić1, Sho Araiba2, Temple S Lovelace3
1Special Education Department, University of Hawaii at Manoa, 1776 University Ave., Wist Hall 120, Honolulu, HI 96822 USA.
Behavior Analysis in Practice
|June 7, 2021
Summary
Black caregivers of children with autism spectrum disorder (ASD) face racism in the U.S. healthcare system. This review highlights their experiences and offers guidelines for culturally responsive care.
Area of Science:
- Health Services Research
- Sociology of Health and Illness
- Disability Studies
Background:
- Racial and ethnic disparities in healthcare access and quality are well-documented.
- Black families experience unique challenges within the U.S. healthcare system, particularly when seeking services for children with autism spectrum disorder (ASD).
- Understanding these experiences is crucial for improving care equity.
Purpose of the Study:
- To review qualitative studies on the racism-related experiences of Black caregivers of children with ASD in the U.S. healthcare system.
- To examine both institutional (systemic) and individual racism encountered by these families during diagnosis and service seeking.
- To provide culturally responsive practice guidelines for applied behavior analysis (ABA) practitioners.
Main Methods:
- Systematic review of qualitative studies.
- Analysis of racism-related experiences, including institutional and individual racism.
- Synthesis of findings to inform practice guidelines.
Main Results:
- Black caregivers report significant experiences of both institutional and individual racism when navigating healthcare for their children with ASD.
- These experiences create barriers to timely diagnosis and consistent access to necessary services.
- Racism impacts the therapeutic relationship and trust between families and providers.
Conclusions:
- Addressing racism is essential for equitable healthcare for Black families with children with ASD.
- Culturally responsive and context-specific practices are needed for ABA practitioners.
- Collaborative approaches that acknowledge and mitigate racism are vital for improving outcomes.
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