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Using the performance arts to address a "methods gap" in dementia research.

Christine Novy¹, Roanne Thomas¹, Linda Garcia¹

¹Faculty of Health Sciences, University of Ottawa, Ottawa, Canada.

|June 21, 2021

Summary

This study introduces creative methods for dementia research in long-term care. It ensures inclusive participation for cognitively frail individuals, valuing diverse communication styles in caregiving research.

Keywords:

Biographical methods dementias drama methodology theatre

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Area of Science:

Gerontology
Dementia Care Research
Qualitative Inquiry

Background:

Traditional research methods often exclude residents with communication challenges in long-term care settings.
Dementia research requires innovative and collaborative approaches to capture diverse perspectives.

Purpose of the Study:

To explore relational care within a long-term care setting.
To develop inclusive research methodologies for cognitively frail participants.
To understand the experiences of residents with dementia, family members, and personal support workers.

Main Methods:

Performance-based narrative inquiry within a long-term care environment.
Involving the 'care triad': residents with dementia, family members, and personal support workers.
Utilizing creative measures to facilitate expression beyond verbal communication.

Main Results:

The study design prioritizes inclusivity for participants with cognitive impairments.
Creative approaches accommodate diverse communication needs, including non-verbal expressions.
Multiple perspectives on relational care are gathered from all members of the care triad.

Conclusions:

Innovative research designs are crucial for inclusive dementia care studies.
Performance-based narrative inquiry can effectively engage cognitively frail individuals.
This approach enhances understanding of relational care in long-term settings.