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Published on: October 6, 2023
Patient Engagement: an Assessment of Canadian Radiotherapy Programs' Current Practices, Perceived Barriers, and
Gabrielle Robin1,2, Erika Brown3,4, Carol-Anne Davis5,3,4
1Dalhousie University, Halifax, NB & NS, Canada. grobin@dal.ca.
Canadian radiation oncology programs (ROP) have mandated patient engagement and education. Despite guidance documents, awareness and use of tools remain low, highlighting a need for improved uptake and pan-Canadian initiatives to enhance radiotherapy quality of care.
Area of Science:
- Medical Oncology
- Radiation Therapy
- Healthcare Quality Improvement
Background:
- Patient engagement and education are mandated in Canadian radiation oncology programs (ROP).
- Several guidance documents exist, including the CARO Radiation Therapy Patient Charter and CPQR Patient Engagement Guidelines.
- Little is known about the actual implementation and uptake of these mandates within Canadian ROP.
Purpose of the Study:
- To assess current patient engagement and education practices in Canadian ROP.
- To evaluate awareness and uptake of existing national guidance documents.
- To identify gaps and inform future pan-Canadian initiatives for optimizing patient care.
Main Methods:
- An electronic survey was distributed to 44 Canadian ROP.
- The survey focused on awareness and utilization of CARO Patient Charter and CPQR Patient Engagement Guidelines (PEG).
- Survey development incorporated guidance documents and expert consensus.
Main Results:
- 71% of ROP were familiar with the CARO Patient Charter, but only 24% reported using it.
- 53% knew of the CPQR PEG, with 37% having completed a self-audit.
- Most ROP (88%) found a pan-Canadian, evidence-based approach beneficial and feasible (80%), and 89% were willing to share best practices.
Conclusions:
- While patient engagement and education are nationally mandated, significant gaps exist in awareness and use of available tools across Canadian ROP.
- These gaps impact the uptake of critical quality of care processes.
- Findings will guide CPQR/CARO initiatives to improve uptake and develop standardized educational guidance for Canadian radiation treatment programs.
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