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Home care for children with gastrostomy
Ana Paula Lopes Pinheiro Ribeiro1, Juliana Rezende Montenegro Medeiros de Moraes1, Ana Beatriz Azevedo Queiroz1
1Universidade Federal do Rio de Janeiro. Rio de Janeiro, Rio de Janeiro, Brazil.
Family caregivers develop essential home care strategies for children with gastrostomy (tube). They gain knowledge in device maintenance, stoma care, and feeding, ensuring the child
Area of Science:
- Pediatric Nursing
- Home Healthcare
- Qualitative Research Methods
Background:
- Children with gastrostomy require specialized home care.
- Family members are primary caregivers, necessitating understanding of complex procedures.
Purpose of the Study:
- To describe home care practices for children with gastrostomy.
- To understand the experiences of family caregivers in maintaining the child's life.
Main Methods:
- Qualitative research utilizing the Sensitive Creative method.
- Lexical analysis performed using IRaMuTeQ® software.
- Ten family caregivers of children with gastrostomy participated.
Main Results:
- Caregivers focus on gastrostomy tube routine, stoma care, and feeding/medication management.
- Theme: "The care for maintaining life performed by family members of children with gastrostomy at home" was analyzed.
- Three classes emerged: tube routine, gastrostomy/stoma care, and food/medication care.
Conclusions:
- Family caregivers develop effective strategies for gastrostomy device maintenance.
- Caregivers acquire new knowledge in stoma care, feeding, and medication administration.
- Enhanced nursing competence observed in family members managing gastrostomy care.
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