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A First Look at Applied Behavior Analysis Service Delivery to Latino American Families Raising a Child With Autism
Rocío Rosales1, Alberto Leon1,2, Richard W Serna1
1Department of Psychology, University of Massachusetts, Lowell, 850 Broadway St, Lowell, MA 01854-3059 USA.
Latino children face delays in autism spectrum disorder (ASD) diagnosis and accessing applied behavior analysis (ABA) services. Barriers like limited awareness and language impede access, highlighting a need for improved support for these families.
Area of Science:
- Pediatric Health
- Developmental Psychology
- Health Services Research
Background:
- Children of Latino background are diagnosed with autism spectrum disorder (ASD) later than non-Latino White children.
- Access to applied behavior analysis (ABA) services is crucial post-diagnosis.
- Barriers like low awareness, healthcare access, literacy, and language impede service access for Latino families.
Purpose of the Study:
- To gather preliminary data on the experiences of Latino American families in Massachusetts accessing and maintaining ABA services.
- To understand the challenges faced by these families in obtaining critical developmental interventions.
Main Methods:
- Conducted structured interviews with 28 families residing in Massachusetts.
- Families included had a child diagnosed with ASD aged 8 years or younger.
- Interview questions covered child's background, diagnosis, access difficulties, and parent perceptions of ABA services.
Main Results:
- Preliminary findings highlight significant challenges Latino families encounter in accessing and sustaining ABA services.
- Identified barriers include healthcare system navigation, awareness of resources, and linguistic challenges.
- Parental perceptions of existing ABA services were also explored.
Conclusions:
- The study underscores the need for culturally sensitive and accessible ABA services for Latino families.
- Results suggest future research should focus on developing targeted interventions to mitigate identified barriers.
- Improved service delivery models are needed to ensure equitable access to early intervention for children with ASD from diverse backgrounds.
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