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Meaningful Digital Consent in Canada: Recommendations from Pan-Canadian Consent Management Workshops
Nelson Shen1, Iman Kassam2, Daria Ilkina3
1A project scientist at the Centre for Complex Interventions, Centre for Addiction and Mental Health (CAMH). He is also an assistant professor at the Institute of Health Policy, Management and Evaluation, University of Toronto, in Toronto, ON. He can be contacted at nelson.shen@camh.ca.
Abstract:
The digital health landscape is rapidly evolving with regard to how society accesses and interacts with digital information and technologies. With a largely commercial marketplace, there are growing concerns that users are not fully informed about how their data are used. Canadian privacy legislation is currently undergoing modernization to improve the transparency of commercial information handling practices through the introduction of meaningful consent. This paper reports on workshops held across Canada, exploring the implications of meaningful consent in a digital health context. Recommendations focus on measures to promote transparency, improve digital literacy and foster public trust in digital health innovations.
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