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Updated: Oct 2, 2025
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The HoneyComb Paradigm for Research on Collective Human Behavior
Published on: January 19, 2019
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Exploring intersectionality: an international yet individual issue.
1University of Glasgow Medical School, University of Glasgow, University Avenue, Glasgow, G12 8QQ, Scotland. zainabalani@outlook.com.
Orphanet Journal of Rare Diseases
|February 28, 2022
Summary
Intersectionality in healthcare, stemming from systemic inequalities and ingrained biases, affects rare disease patients. Addressing these multifactorial issues is crucial for equitable care and can be overcome.
Area of Science:
- Medical Sociology
- Health Equity Studies
- Patient Advocacy
Background:
- Explores intersectionality within healthcare, driven by systemic inequalities and societal perceptions.
- Highlights personal experiences of a medical student and rare disease patient with generalized Myasthenia Gravis.
- Examines how ingrained biases and systemic issues create barriers in healthcare access and treatment.
Discussion:
- Discusses the multifactorial challenges faced by patients at the intersection of multiple identities and conditions.
- Emphasizes the need to humanize rare disease statistics by recognizing individual patient experiences.
- Analyzes the exacerbation of healthcare disparities highlighted by the coronavirus pandemic.
Key Insights:
- Intersectionality acts as a pervasive 'disease' within the healthcare system, undermining equitable treatment.
- The coronavirus pandemic has exposed and amplified pre-existing divides in healthcare delivery and access.
- Personal narratives are essential for understanding and addressing the lived realities of intersectionality.
Outlook:
- Proposes collective strategies for clinicians and patients to navigate and dismantle systemic barriers.
- Advocates for a fundamental shift in addressing healthcare inequalities rather than superficial 'plastering'.
- Asserts that intersectionality, unlike many rare diseases, is a solvable societal and systemic issue.
Keywords:
AutoimmunityBAMECoronavirusDiscriminationGeneralised Myasthenia GravisIntersectionalityRacismRare diseaseMore Related Videos
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