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Published on: December 6, 2016
Descriptive analysis of palliative sedation in a pediatric palliative care unit
Iñigo de Noriega1, Manuel Rigal Andrés2, Ricardo Martino Alba2
1Servicio de Pediatría, Hospital Universitario Puerta de Hierro-Majadahonda, Madrid, Spain.
Insights
Creating a quality standard for pediatric palliative sedation (PS) revealed areas for improvement in clinical practice. The developed definition highlighted needs in consent, indication, and sedative dosing for better patient care.
Area of Science:
- Pediatric Palliative Care
- Clinical Quality Improvement
- Medical Ethics
Background:
- Limited data exists on palliative sedation in pediatric patients.
- Assessing the utility of a quality standard for pediatric palliative sedation is crucial.
Purpose of the Study:
- To evaluate the effectiveness of a proposed quality standard for pediatric palliative sedation.
- To identify areas for improvement in the clinical application of pediatric palliative sedation.
Main Methods:
- A non-systematic literature review identified recommendations for pediatric palliative sedation.
- A definition was established based on indication, consent, and application.
- Retrospective analysis of 5 years of palliative sedation cases within the unit was conducted.
Main Results:
- Palliative sedation was applied to 20 out of 163 patients; 17 cases were from the unit.
- Common indications included oncological and neurological conditions, with pain and dyspnea as frequent symptoms.
- Only 3 patients fully met the definition criteria, indicating significant room for improvement in documentation of consent, refractoriness, and initial sedative dosage.
Conclusions:
- The developed definition effectively highlighted areas needing improvement in pediatric palliative sedation practices.
- Implementing this quality standard can enhance the clinical application and documentation of palliative sedation in pediatric care.
Introduction:
Data surrounding palliative sedation in pediatric patients is scarce. Our objective is to assess the utility of creating a quality standard for pediatric palliative sedation.
Material And Methods:
A non-systematic review of the literature was used to find recommendations for pediatric palliative sedation, after which a definition was established based on three items: (1) indication, (2) consent, and (3) application. Afterwards, a retrospective analysis of palliative sedations applied by our unit over 5 years was performed.
Results:
Out of 163 patients, palliative sedation was applied in 20, in 17 of them by our unit (14/20 males; median: 11.9 years). Twelve patients had oncological diseases, seven had neurological conditions, and one had a polymalformative syndrome. Nine patients had more than one symptom at the time of PS initiation with pain (11/17) and dyspnoea (10/17) being the most frequent. As for the definition, only three patients achieved a global completion, with the registration of the consent, specification of refractoriness and the establishment of an adequate initial sedative dose being the areas with more possible improvement.
Conclusions:
The application of the definition allowed us to analyze and find areas of improvement for our clinical practice of palliative sedation in pediatric patients.
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