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Testing a Wellness Indicators Measure for People with Intellectual and Developmental Disabilitiesa
Matthew Bogenschutz1, Michael Broda1, Sarah Lineberry1
1Virginia Commonwealth University, Richmond, VA.
Developmental Disabilities Network Journal
|June 20, 2022
Summary
A new wellness monitoring model for people with intellectual and developmental disabilities (IDD) was developed using National Core Indicators data. This model, focusing on health and behavioral wellness, can help track service impacts across states.
Area of Science:
- Public Health
- Disability Studies
- Health Services Research
Background:
- Individuals with intellectual and developmental disabilities (IDD) experience significant health and wellness disparities compared to the general population.
- State-level monitoring of health and wellness for individuals with IDD utilizing disability services is mandated but lacks robust, comparable methods.
- Existing monitoring systems offer limited capacity for cross-state comparisons or longitudinal tracking of wellness.
Purpose of the Study:
- To introduce and validate a novel wellness monitoring model for individuals with IDD.
- To provide states with a standardized framework for assessing and comparing the health and wellness outcomes of people with IDD.
- To facilitate a better understanding of how disability service policies influence wellness indicators over time and across different states.
Main Methods:
- Utilized data from the National Core Indicators (NCI) survey.
- Developed an initial wellness model using state-specific NCI data.
- Validated the developed model using comprehensive national NCI data from across the U.S.
Main Results:
- The developed wellness model demonstrated strong performance on both state-level and national NCI datasets.
- The model encompasses three key wellness dimensions: heart health, mental health, and behavioral wellness.
- Demographic factors including age, sex, geographic location, and level of intellectual disability were identified as significant predictors across all wellness domains.
Conclusions:
- The validated wellness model shows promise for monitoring the health and well-being of individuals with IDD.
- Further testing with data from diverse state populations is recommended to ensure generalizability.
- This model offers a valuable tool for policymakers, planners, and advocates to assess service effectiveness and promote equitable wellness outcomes for people with IDD.
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