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A Pilot Randomized Control Trial of Teens Taking Charge: A Web-based Self-management Program for Adolescents with
Vicky R Breakey1, Abha Gupta2, Donna L Johnston3
1103398McMaster Children's Hospital, Hamilton, ON, Canada.
Journal of Pediatric Hematology/Oncology Nursing
|June 27, 2022
Summary
The Teens Taking Charge Cancer program showed low feasibility for adolescents with cancer, with poor engagement and completion rates. Future web-based interventions need enhanced features to improve participation and adherence for this population.
Area of Science:
- Adolescent oncology
- Digital health interventions
- Cancer self-management
Background:
- Adolescents with cancer (AWC) lack accessible self-management tools.
- A pilot randomized control trial (RCT) assessed the feasibility of the web-based 'Teens Taking Charge Cancer' program.
- The program aimed to support AWC in managing their health during treatment.
Purpose of the Study:
- To evaluate the feasibility of a web-based self-management program for adolescents with cancer.
- To assess recruitment, retention, adherence, and engagement with the intervention.
- To gather feedback on acceptability and satisfaction with the program.
Main Methods:
- A pilot RCT involving 81 adolescent-caregiver dyads across 4 pediatric oncology clinics.
- Participants were randomized to an intervention (web-based modules, health coach calls) or control group.
- Outcomes included accrual, retention, adherence, engagement, acceptability, and satisfaction over 12 weeks.
Main Results:
- A low retention rate of 33% was observed.
- Only 46% of the intervention group logged in, completing a mean of 2.4 out of 12 modules.
- No participants, adolescents or caregivers, completed the full program, indicating poor engagement.
Conclusions:
- The current design of the 'Teens Taking Charge Cancer' program is not feasible for adolescents with cancer.
- Future digital health interventions require modifications to enhance user uptake and engagement.
- Further research is needed to develop effective self-management tools for this population.
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