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Related Concept Videos

Intellectual Disability01:29

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Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
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Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
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Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
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Engaging the disability community in informatics research: rationales and practical steps.

Rupa S Valdez1,2,3, Sophie E Lyon1, Claire Wellbeloved-Stone3

  • 1Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA.

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Summary

Digital health technologies can better serve disabled individuals by adopting a holistic approach to disability. This involves considering multiple disabilities and intersecting identities for inclusive design.

Keywords:
digital healthdisability and accesshealth equityresearch guidelinesuniversal design

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Area of Science:

  • Health Informatics
  • Disability Studies
  • Human-Computer Interaction

Background:

  • The informatics community has an opportunity to address health disparities by focusing on the disability community.
  • Current digital health technology design often addresses disabilities in isolation, rather than holistically.
  • A holistic framework is needed to account for multiple disabilities and intersecting identities.

Purpose of the Study:

  • To advocate for a holistic framework in digital health technology design for the disability community.
  • To provide guidelines for effective engagement with the disability community in technology development.
  • To enhance the inclusivity and effectiveness of digital health technologies for all disabled individuals.

Main Methods:

  • Review of ethical, legal, and design rationales for a holistic approach.
  • Incorporation of research and advocacy experiences with the disability community.
  • Development of guidelines for community engagement in technology design.

Main Results:

  • A holistic framework is ethically, legally, and design-wise imperative for digital health technologies.
  • Effective engagement with the disability community is crucial for inclusive design.
  • Guidelines for engagement can lead to more equitable digital health solutions.

Conclusions:

  • Adopting a holistic approach to disability in informatics is essential for addressing health disparities.
  • Collaborative design with the disability community ensures digital health technologies meet diverse needs.
  • Informatics must evolve to create truly inclusive and accessible digital health solutions for all.