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African American Perceptions of Participating in Health Research Despite Historical Mistrust.
Marie Campbell Statler1, Barbra Mann Wall, Jeanita W Richardson
1Department of Nursing, Towson University, Towson, Maryland (Dr Statler); University of Virginia School of Nursing, Charlottesville (Drs Wall, Jones, and Kools); Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville (Dr Richardson); and University of Virginia Cancer Center, Charlottesville (Dr Jones).
ANS. Advances in Nursing Science
|August 19, 2022
Summary
African Americans (AA) are willing to participate in health research when researchers prioritize race concordance, respect, and transparency. Addressing historical mistreatment and racism is crucial for inclusive research participation.
Area of Science:
- Health Disparities
- Qualitative Research Methods
- Health Equity
Background:
- Historical mistreatment has created mistrust among African Americans (AA) regarding health research.
- Dominant ideologies often incorrectly assume AA are unwilling to participate in research.
Purpose of the Study:
- To examine African American perspectives on participating in health research.
- To identify factors influencing AA participation in research.
- To challenge misconceptions about AA research engagement.
Main Methods:
- A qualitative descriptive approach was employed.
- Semistructured interviews were conducted with 19 African Americans.
- Thematic analysis was used to analyze interview data.
Main Results:
- Key themes included the importance of race concordance between participants and researchers.
- Participants valued being respected and valued by researchers.
- Motivators for participation and experiences of racism in healthcare were significant factors.
- African Americans are willing to participate in research under the right conditions.
Conclusions:
- The study challenges the notion that African Americans are unwilling to participate in research.
- Researchers must design inclusive and transparent studies.
- Addressing historical mistreatment and racism is essential for promoting equitable research participation.
- Future research should focus on how studies impact future generations.
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