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Dementia Research on Facebook and Twitter: Current Practice and Challenges
Viorica Hrincu1, Zijian An2, Kenneth Joseph2
1Department of Medicine, Division of Neurology, University of British Columbia, Vancouver, BC, Canada.
Journal of Alzheimer'S Disease : JAD
|September 26, 2022
Summary
Social media platforms effectively engage the public in dementia research, with knowledge sharing being the primary content exchange. Findings can guide ethical social media practices in health research.
Area of Science:
- Social media research
- Public health engagement
- Dementia science communication
Background:
- Social media is a vital tool for engaging diverse audiences in dementia research.
- Limited data exists on current social media content exchange within this field.
Purpose of the Study:
- To characterize current social media practices for dementia research engagement.
- To inform ethical guidelines for social media use in dementia research.
Main Methods:
- Analysis of public Facebook (N=7,896) and Twitter (N=9,323) posts related to dementia research.
- Qualitative and quantitative content and sentiment analysis of 10% of retrieved posts.
Main Results:
- Advocacy and health organizations dominated Facebook, while academics led Twitter.
- Prevention was the most common theme, followed by treatment.
- Knowledge sharing was the primary content exchange (63% Facebook, 80% Twitter); most shared articles were open access.
- Justice and equity were prominent ethical considerations.
Conclusions:
- Social media is crucial for disseminating dementia research findings and identifying engagement opportunities.
- Data supports the development of best practices for ethical social media engagement in dementia research.
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