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Adapting a Patient-Reported Outcome Measure to Digital Outpatient Specialist Health Care Services for Type 1
Heidi Holmen1,2, Tone Singstad3, Lis Ribu4
1Department of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, Norway.
JMIR Human Factors
|November 15, 2022
Summary
This study adapted a digital patient-reported outcome (PRO) measure for type 1 diabetes care, ensuring it accurately reflects patient needs and enhances communication with healthcare providers.
Area of Science:
- Digital Health
- Patient-Reported Outcomes
- Diabetes Management
Background:
- Effective diabetes self-management is vital for type 1 diabetes patients.
- Digital services can enhance self-management and flexible follow-up.
- Current use of digital patient-reported outcome (PRO) measures is limited by a lack of adapted tools.
Purpose of the Study:
- To present the process of identifying and adapting a digital PRO measure for clinical diabetes practice.
- To describe preferred item topics for the adapted PRO measure, as reported by patients and specialist nurses.
Main Methods:
- Involved patients, diabetes specialist nurses, management, and researchers in workshops and dialogue conferences.
- Conducted scoping searches to identify relevant PRO measures.
- Translated and adapted a diabetes-specific PRO measure for a digital platform, with thematic analysis of conference data.
Main Results:
- Identified an overarching theme: ensuring the PRO measure accurately captures patient needs for effective care and communication.
- Highlighted the need for explanatory text, capturing individual needs in standardized questions, and promoting patient reflection.
- Found that both patients and nurses reported the adapted PRO measure as relevant and addressing their needs.
Conclusions:
- Successfully adapted a digital PRO measure through an iterative, user-involved process.
- The adapted PRO measure aligns with clinical requests and user needs for type 1 diabetes care.
- Facilitated the implementation of the adapted digital PRO measure in routine care.
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