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Caregiver Perceptions of an Interdisciplinary Intensive Therapy Program: A Qualitative Study.
Jamie B Hall1, Dana Chole, Taylor C Pruitt
1Department of Physical Therapy (Drs Hall, Chole, Pruitt, and Linkeman), University of Missouri, Columbia, Missouri; University of Missouri Healthcare Children's Therapy Center (Dr Chole), Columbia, Missouri.
Caregivers found intensive, interdisciplinary therapy beneficial for children with neurodevelopmental conditions. This approach, involving multiple therapies, empowers families and supports significant progress, offering a valuable alternative to conventional treatments.
Area of Science:
- Pediatric Rehabilitation
- Neurodevelopmental Disorders
- Interdisciplinary Care
Background:
- Children with neurodevelopmental conditions often require intensive, multidisciplinary therapeutic interventions.
- Traditional therapy models may not always meet the complex rehabilitation needs of these children.
- Exploring innovative service delivery models is crucial for optimizing child outcomes.
Purpose of the Study:
- To investigate caregiver perceptions of an interdisciplinary intensive therapy program for children with neurodevelopmental conditions.
- To understand the experiences and perceived benefits of this intensive therapeutic approach from the caregiver's perspective.
Main Methods:
- Semi-structured interviews were conducted with 13 caregivers of children (aged 6-13 years) undergoing intensive therapy.
- The program involved occupational, physical, and/or speech therapy for 3-6.5 hours/day, 3-5 days/week, over 4 weeks.
- Reflexive thematic analysis was employed to identify key themes from the caregiver interviews.
Main Results:
- An overarching theme of 'Immersive' experience was identified by caregivers.
- Key themes included 'Everybody's Empowered,' 'Principles of Neuroplasticity,' 'Progress Across the ICF Framework,' 'It Takes a Team,' and 'Benefits Outweigh the Challenges.'
- Caregivers reported positive experiences and valued the collaborative, team-based approach to goal setting and care.
Conclusions:
- Caregivers highly valued the interdisciplinary intensive therapy program.
- This intensive, interdisciplinary model may serve as a viable and effective alternative to traditional therapy for children with complex rehabilitation needs.
- The findings highlight the importance of collaborative, intensive therapeutic interventions in pediatric neurodevelopmental care.
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