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Developing a research community within an online healthcare feedback platform
Beth Fylan1,2, James Munro3, Jane K O'Hara1,4
1Yorkshire Quality and Safety Research Group, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK.
Summary
Many patients who share feedback online are willing to join research communities. They prefer supporting university and NHS research, but need more information on involvement and diversity is needed.
Area of Science:
- Healthcare research
- Patient and public involvement in research
- Online communities
Background:
- Care Opinion is a platform for patients to share experiences of care.
- The willingness of these patients to engage in research is unknown.
- This study explores patient interest in an online research community.
Purpose of the Study:
- To assess Care Opinion authors' willingness to join an online research community.
- To understand authors' preferences for research participation.
- To pilot new functionalities for an online research community.
Main Methods:
- An online survey was distributed to 509 Care Opinion authors.
- Survey questions focused on willingness to participate and support preferences.
- Descriptive analysis was used, and authors were invited to join a research community and pilot studies.
Main Results:
- 163 authors (32%) completed the survey.
- Key preferences included knowing time commitment (90%), research organization details (76%), and safeguarding (76%).
- 53% were unaware of how to get involved in healthcare research; 183 (27%) joined the research community.
Conclusions:
- Patients providing online feedback are open to joining research communities.
- Strong preference exists for supporting University and NHS research.
- Further efforts are needed to enhance community growth, diversity, and research opportunities.
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