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Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental

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This review maps sibling programs for individuals with neurodevelopmental disabilities. While programs are increasing, more research is needed on their impact and involving siblings in program development.

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ChildrenDisabilityProgramSiblingsYouth

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Area of Science:

  • Sibling studies
  • Neurodevelopmental disabilities
  • Family support programs

Background:

  • Sibling support programs for individuals with neurodevelopmental disabilities often provide information and community.
  • Programs may include family sessions, but sibling-specific outcomes are understudied.
  • There's a need to understand the impact of these programs on siblings.

Purpose of the Study:

  • To identify and map characteristics of sibling support programs.
  • To determine the outcomes of programs preparing siblings for future roles.
  • To understand the impact of these programs on siblings of individuals with neurodevelopmental disabilities.

Main Methods:

  • Systematic review of 58 articles published between 1975 and 2020.
  • Analysis of 54 sibling programs from 11 countries.
  • Data extraction on 1033 sibling participants (ages 4-67).

Main Results:

  • Programs increasingly focus on knowledge acquisition and sibling empowerment.
  • A growing number of programs exist, with over 50% published since 2010.
  • A lack of sibling involvement as co-developers or facilitators was noted.

Conclusions:

  • While sibling programs are expanding, their specific impacts require further investigation.
  • Future research should explore diverse sibling roles in program development and facilitation.
  • Addressing sibling needs through co-designed programs is crucial for better outcomes.