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Caroline Favron-Godbout, Eric Racine

    Journal International De Bioethique Et D'Ethique Des Sciences
    |March 30, 2023
    PubMed
    Summary
    This summary is machine-generated.

    Medical assistance in dying (MAiD) for amyotrophic lateral sclerosis (ALS) presents moral challenges. Widening MAiD eligibility may only partially resolve these issues, particularly those concerning the choice of how to die.

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    Area of Science:

    • Neuroscience
    • Medical Ethics
    • Palliative Care

    Background:

    • Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease.
    • Some individuals with ALS consider medical assistance in dying (MAiD) due to the disease's impact.
    • Existing MAiD eligibility criteria may not fully address the complex ethical landscape for ALS patients.

    Approach:

    • A critical literature review was conducted using MEDLINE, EMBASE, CINAHL, and Web of Science.
    • Searches focused on ethics, MAiD, and ALS, yielding 41 relevant articles.
    • Thematic content analysis identified moral issues within three categories: disease experience, end-of-life choices, and MAiD implementation.

    Key Points:

    • Moral issues in ALS and MAiD arise from the disease experience, the choice of death, and MAiD implementation.

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  • Stakeholder perspectives on ALS and MAiD differ, leading to potential disagreements but also shared views.
  • Widening MAiD eligibility primarily addresses moral concerns related to the method of dying.

    • Conclusions:

    • Widening MAiD eligibility offers a partial solution to the moral challenges faced by people with ALS.
    • A comprehensive approach is needed to address the full spectrum of ethical issues, considering diverse stakeholder viewpoints.
    • Further research should explore the nuanced ethical considerations surrounding MAiD for individuals with progressive neurodegenerative conditions like ALS.