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Updated: Aug 4, 2025

A Precision Medicine Tool for Measurement and Monitoring of Hemoglobin S in Sickle Cell Disease Patients Receiving Transfusion Therapy
[Patient partnership: sharing experience in sickle cell vaso-occlusive crisis]
Lucie Loiret1, Laura Marquet1, Bertrand Lioger1
1Service de médecine interne et polyvalente, 2, Centre hospitalier de Blois, Mail Pierre Charlot, 41000 Blois, France.
Abstract:
The patient partnership is a new approach in which the patient, through his knowledge acquired from his experience with the disease, is a stakeholder in decisions about care, the organization of the health system and choices in terms of health policy. A team from the Blois hospital (41) was able to share the experience of a patient partnership during the analysis of a complex medical situation with a young man with sickle cell disease in a vaso-occlusive crisis. She reports here this new and enriching experience.
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