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Updated: Aug 1, 2025

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Family Interviews Inform School-based Nursing for Children with Type 1 Diabetes and their Families
Sarah J Ogilvie1, Patricia Beierwaltes1,2, Gwen Verchota1
1School of Nursing, Minnesota State University - Mankato, Mankato, MN, USA.
Summary
This study explored the challenges faced by families with type 1 diabetes mellitus (T1DM). Findings inform a new school-based program to support youth and families managing T1DM.
Area of Science:
- Pediatric Endocrinology
- Family Health
- School Nursing
Background:
- Type 1 Diabetes Mellitus (T1DM) significantly impacts school-aged children and their families.
- Understanding these burdens is crucial for developing effective support strategies.
Purpose of the Study:
- To investigate the multifaceted burdens of T1DM on school-aged youth and families.
- To identify actionable strategies for school nurses to mitigate the disease's impact.
- To inform the development of a supportive school-based program.
Main Methods:
- Conducted semi-structured interviews with 5 families (15 participants) experiencing T1DM.
- Employed directed content analysis to identify key themes from family experiences.
- Explored individual and family struggles, teamwork, barriers, and uncertainty.
Main Results:
- Identified significant individual and family struggles associated with T1DM management.
- Highlighted the critical role of family teamwork in navigating T1DM.
- Revealed common barriers and feelings of uncertainty faced by families.
- Themes directly informed the creation of a school-based program.
Conclusions:
- A school-based program focusing on communication, care coordination, cognition, problem-solving, and strength-building is proposed.
- The program will emphasize participant-directed content and peer support for youth and families with T1DM.
- School nurses can play a vital role in supporting families affected by T1DM.
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