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The impact of rural status on pediatric chronic kidney disease
Morgan Bobb Swanson1, Darcy K Weidemann2, Lyndsay A Harshman3
1Department of Epidemiology, College of Medicine and College of Public Health, University of Iowa, Iowa City, IA, USA.
Insights
Children with chronic kidney disease (CKD) in rural areas face significant access barriers to specialized pediatric nephrology care. Strategies like telehealth and regionalization can improve care delivery for these underserved populations.
Area of Science:
- Pediatric Nephrology
- Rural Health
- Healthcare Access
Background:
- Children and adolescents with chronic kidney disease (CKD) in rural settings encounter substantial obstacles in accessing specialized pediatric nephrology care.
- Increased distances to healthcare centers and the centralization of pediatric services exacerbate these challenges.
- Access is further complicated by factors including approachability, availability, affordability, and appropriateness of care for rural populations.
Purpose of the Study:
- To identify and review the unique challenges faced by rural pediatric CKD patients in accessing care.
- To explore barriers to kidney replacement therapy for rural pediatric patients.
- To propose strategies for improving healthcare systems for rural CKD patients and their families.
Main Methods:
- This is an educational review synthesizing current literature on rural pediatric CKD care access.
- It identifies barriers and proposes potential solutions based on existing research and trends.
Main Results:
- Rural pediatric CKD patients face multifaceted barriers including distance, limited resources (financial, educational, social), and workforce distribution gaps.
- Kidney replacement therapy options may be even more restricted for rural pediatric patients compared to rural adults.
- Key strategies include increasing research focus on rural populations, addressing workforce distribution, implementing regionalization models, and utilizing telehealth.
Conclusions:
- Improving healthcare systems for rural pediatric CKD patients requires a multi-pronged approach.
- Addressing geographic disparities, resource limitations, and care delivery models is crucial.
- Telehealth and regionalization show promise in expanding access and reducing patient burden.
Abstract:
Children and adolescents in rural areas with chronic kidney disease (CKD) face unique challenges related to accessing pediatric nephrology care. Challenges to obtaining care begin with living increased distances from pediatric health care centers. Recent trends of increasing centralization of pediatric care mean fewer locations have pediatric nephrology, inpatient, and intensive care services. In addition, access to care for rural populations expands beyond distance and encompasses domains of approachability, acceptability, availability and accommodation, affordability, and appropriateness. Furthermore, the current literature identifies additional barriers to care for rural patients that include limited resources, including finances, education, and community/neighborhood social resources. Rural pediatric kidney failure patients have barriers to kidney replacement therapy options that may be even more limited for rural pediatric kidney failure patients when compared to rural adults with kidney failure. This educational review identifies possible strategies to improve health systems for rural CKD patients and their families: (1) increasing rural patient and hospital/clinic representation and focus in research, (2) understanding and mediating gaps in the geographic distribution of the pediatric nephrology workforce, (3) introducing regionalization models for delivering pediatric nephrology care to geographic areas, and (4) employing telehealth to expand the geographic reach of services and reduce family time and travel burden.
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