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A self-directed co-creation process for developing a care pathway for patients on oral anticancer therapy: A
Ilyse Kenis1, Lise-Marie Kinnaer2, Caro Delombaerde3
1Department of Pharmaceutical and Pharmacological Sciences, Clinical Pharmacology and Pharmacotherapy, KU Leuven, Leuven, Belgium; Department of Public Health and Primary Care, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.
Stakeholders found co-creating care pathways for oral anticancer drugs burdensome, but feasible with shared leadership and motivated teams. Success factors like shared leadership and team motivation are key for effective oncology care pathway development.
Area of Science:
- Oncology
- Healthcare Management
- Process Evaluation
Background:
- Developing patient care pathways is crucial for optimizing treatment.
- Oral anticancer drugs require specific management strategies.
- Self-directed co-creation aims to empower stakeholders in pathway development.
Purpose of the Study:
- To explore stakeholder experiences in self-directed co-creation of care pathways for oral anticancer drugs.
- To identify success factors for co-creation during pilot and scale-up phases.
Main Methods:
- Qualitative process evaluation in 11 Belgian oncology departments.
- Semi-structured interviews with 13 local coordinators and 19 project team members.
- Thematic analysis of interview data.
Main Results:
- Co-creation was perceived as burdensome despite external support.
- Persistent success factors included shared leadership, intrinsically motivated teams, and a balance between support and self-direction.
- Shared leadership involved coordinators, physicians, and hospital management.
Conclusions:
- Self-directed care pathway co-creation is feasible with prerequisites like shared leadership and team motivation.
- More concrete tools, adaptable to hospital contexts, are needed to enhance feasibility.
- Findings are applicable to scaling up in oncology and other healthcare settings.
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