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Exploring Audio Recording in Terminally Ill Patients Receiving Hospice Care: "Stories for Life Charity" Model
Summary
Terminally ill patients found recording their life stories beneficial for reflection and connection. This audio biography process offered catharsis, though sharing difficult emotions posed challenges for patients.
Area of Science:
- Palliative Care
- Psychosocial Support
- Digital Humanities
Background:
- Terminally ill patients often seek ways to preserve their legacy and connect with loved ones.
- The 'Stories for Life' charity offers audio recording of life stories for patients facing end-of-life care.
- Exploring patient experiences with life story recording is crucial for understanding its psychosocial impact.
Purpose of the Study:
- To investigate the experiences of terminally ill patients undergoing the audio life story recording process.
- To understand the perceived benefits and challenges associated with creating a voice-recorded biography.
Main Methods:
- Qualitative study involving interviews with 5 terminally ill patients.
- Inclusion of 1 family member in the interview process.
- Interviews conducted with patients and a family member regarding the recording experience.
Main Results:
- Patients reported catharsis and reflection on life events through storytelling with a neutral interviewer.
- Challenges included conveying difficult emotions while considering the impact on listeners.
- Participants felt the recordings provided a beneficial connection for immediate family and future generations.
Conclusions:
- Audio biography recording offers a valuable space for reflection and emotional processing for terminally ill patients.
- This process can foster meaningful connections between patients, their families, and future generations.
- The study highlights the potential of life story recording as a supportive end-of-life intervention.
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