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Strategies to Engage Blacks in Sleep Medicine: Lessons Learned from Three Studies Applying Community-Based
April Rogers1, Alicia Chung2, Azizi Seixas3,4
1Department of Health and Human Services, St. John's University Collins College of Professional Studies, Queens, New York, 11432,USA.
Journal of Sleep Disorders & Therapy
|July 10, 2023
Summary
Community-engaged research effectively increases Black participation in sleep apnea (OSA) clinical trials. Building trust and adjusting strategies are crucial for successful recruitment and retention in OSA studies.
Area of Science:
- Public Health
- Health Disparities
- Sleep Medicine
Background:
- Awareness, diagnosis, and treatment of obstructive sleep apnea (OSA) are significantly lower among Black populations compared to other racial/ethnic groups.
- This disparity highlights the need for targeted communication strategies and interventions to improve OSA care in Black communities.
Purpose of the Study:
- To present lessons learned from three community-engaged research studies (MetSO, PEERS-ED, TASHE) aimed at addressing OSA health disparities in Black populations.
- To evaluate the effectiveness of community-engaged research models in improving OSA education, detection, and treatment adherence.
Main Methods:
- Utilized a community-engaged research model with bi-directional decision-making involving community stakeholders in all study phases.
- Employed focus groups, in-depth interviews, Delphi surveys, and iterative needs assessments to ensure cultural appropriateness and address community barriers.
- Reviewed three studies (MetSO, PEERS-ED, TASHE) to assess program effectiveness and extract lessons learned.
Main Results:
- Community-engaged strategies successfully enrolled Black populations into clinical trials, reaching nearly 3,000 at-risk individuals and screening approximately 2,000 for OSA.
- Distributed over 10,000 sleep brochures, increasing community awareness.
- Key success factors identified include relationship building, establishing trust, identifying study champions, adaptability, and participant incentives.
Conclusions:
- Community-oriented frameworks foster active engagement, leading to increased enrollment of Black participants in clinical studies.
- Strategic community engagement enhances OSA awareness, diagnosis, and treatment adherence within Black communities.
- These findings underscore the importance of culturally tailored, community-driven approaches to reduce OSA health disparities.
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