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Establishing Reliability and Validity of the FACE-Q Craniofacial Module for Pediatric Head and Neck Cancer
Yi Wang1, Charlene Rae2, Elena Tsangaris3
1Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada.
Journal of Adolescent and Young Adult Oncology
|October 18, 2023
Summary
The FACE-Q Craniofacial Module is a reliable tool for assessing quality of life in pediatric head and neck cancer (HNC) survivors. It demonstrates validity and can be used in research and clinical settings for patients aged 8-29.
Area of Science:
- Medical research
- Psychometrics
- Oncology
Background:
- Pediatric and adolescent patients with head and neck cancer (HNC) require validated tools to assess their quality of life.
- Patient-reported outcome measures (PROMs) are crucial for understanding the impact of HNC and its treatment on young survivors.
- The FACE-Q Craniofacial Module is a PROM designed to evaluate outcomes related to facial appearance and function.
Purpose of the Study:
- To establish content validity of the FACE-Q Craniofacial Module for pediatric and adolescent HNC survivors.
- To assess the psychometric properties, including reliability and validity, of the FACE-Q Craniofacial Module in this population.
- To determine the suitability of the module for use in research and clinical care settings.
Main Methods:
- Content validity was established through cognitive interviews with 15 pediatric HNC survivors and input from 21 clinical experts.
- Psychometric properties were examined using Rasch Measurement Theory (RMT) analysis on data from 121 international HNC survivors.
- Analysis included evaluating item and scale performance, reliability (Person Separation Index, Cronbach's alpha), and validity.
Main Results:
- Qualitative data and expert input supported the module's use in pediatric HNC.
- RMT analysis demonstrated reliability and validity for 10 FACE-Q scales, with high reliability (≥0.82 for 9 scales).
- Higher scores correlated with greater satisfaction with facial aspects; lower scores were observed in participants with facial differences.
Conclusions:
- The FACE-Q Craniofacial Module is a reliable and valid instrument for assessing quality of life in HNC survivors aged 8-29 years.
- The module can be effectively utilized in both research and clinical practice to measure outcomes in pediatric HNC survivors.
- Findings support the use of the FACE-Q Craniofacial Module for evaluating the impact of HNC on young patients' well-being.
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