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Canadian Developmental Follow-up Practices in Children With Congenital Heart Defects: A National Environmental Scan

Marie-Eve Bolduc1,2, Janet E Rennick3,4,5, Isabelle Gagnon1,5

  • 1School of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada.

CJC Pediatric and Congenital Heart Disease
|November 16, 2023
PubMed

Insights

Canadian developmental follow-up for children with congenital heart disease (CHD) after surgery is suboptimal. Key barriers include lack of resources and time, hindering early identification of developmental delays in this high-risk population.

Area of Science:

  • Pediatric Cardiology
  • Developmental Pediatrics
  • Health Services Research

Background:

  • Developmental follow-up is crucial for identifying delays in at-risk children.
  • Data on developmental follow-up for Canadian children with congenital heart disease (CHD) post-surgery are lacking.
  • Current practices may not adequately identify developmental challenges in children with CHD.

Purpose of the Study:

  • To describe current Canadian developmental follow-up practices for children with CHD after open-heart surgery.
  • To explore barriers to optimal developmental follow-up for this population.
  • To inform the development of national recommendations for improved care.

Main Methods:

  • Cross-sectional study involving health professionals from 8 Canadian pediatric open-heart surgery centers.
  • Questionnaire to collect data on current follow-up practices and settings.
  • Interviews to explore optimal follow-up and identify barriers.

Main Results:

  • Only 4 of 8 centers had systematic developmental follow-up programs, often limited to higher-risk subsets.
  • Health professionals consider current practices suboptimal.
  • Major barriers identified include insufficient human resources, financial support, and dedicated time.

Conclusions:

  • Current developmental follow-up for Canadian children with CHD is suboptimal.
  • Existing practices may delay the identification of developmental challenges.
  • National recommendations are needed to optimize follow-up for this high-risk group.
Abstract

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