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Published on: February 16, 2011
Patient-centered or population-centered? How epistemic discrepancies cause harm and sow mistrust
1Princeton University, 118 Julis Romo Rabinowitz, Princeton, NJ, 08540, USA.
Abstract:
Medical distrust is often conceived of as a problem of misinformation or ignorance. In this paper, I depart from this framework, attributing distrust instead to epistemic divergence between lay people and experts. Using data from a contraceptive side effects Facebook group and in-depth physician interviews, I find that providers employ a "body-as-subject" lens informed by population-health goals, while group members employ a "body-as-agent" lens that privileges individuality and bodily autonomy. Provider epistemologies are privileged, creating epistemic injustice and harm for patients. Ultimately, this erodes trust in providers and the medical community more broadly.
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