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Care Models and Discharge Services for Children With Medical Complexity
Yuliya Oumarbaeva-Malone1,2, Valerie Jurgens1,2, Margaret Rush1,2
1Children's National Hospital, Washington DC.
Most children's hospitals have outpatient care models for children with medical complexity (CMC), but dedicated inpatient models are less common. Discharge services vary, with some high-frequency use but many low-frequency services for CMC care coordination.
Area of Science:
- Pediatric Healthcare
- Health Services Research
- Care Management
Background:
- Children with medical complexity (CMC) are significant healthcare users, necessitating specialized care models.
- Existing care models for CMC have not been evaluated nationally.
- Hospital-based care models aim to improve outcomes for high-utilizing pediatric populations.
Purpose of the Study:
- To describe the structure and presence of care models for CMC.
- To assess the utilization of discharge services for CMC.
- To analyze national practices in freestanding children's hospitals.
Main Methods:
- An electronic survey was sent to 48 hospitals in the Pediatric Health Information System.
- Hospitals reported on the types and number of care models for CMC.
- Discharge services were categorized by frequency of use: low, medium, and high.
Main Results:
- 33 out of 48 (69%) hospitals responded, with no significant differences from non-responders.
- A majority (67%) reported outpatient care models; 21% lacked dedicated CMC care models.
- High-frequency discharge services included DME delivery, medication delivery, and pre-discharge provider communication.
Conclusions:
- Significant variation exists in care model structures and discharge services for CMC across children's hospitals.
- Further research is required to link care models and discharge services to healthcare outcomes for CMC.
- The findings highlight the need for standardized and evaluated care coordination strategies for this population.
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